Luke has come up with his own version of the English language. He is going to teach us a new language instead of conforming to the same language we all fluently speak. His new sentence he says is, “Uh, by da way.” Translations: The Insy Weensy Spider or just spider also works for this. Everyday we are starting to hear words out of his babbling we are so excited and then soon discover the word that we all know in English that is is saying really means some totally different. I think this fits his personality to a T. Luke is obsessed with putting his finger in his nose. I thought I was a clever Mom and said, Luke don’t put your fingers in your nose or a spider will bite your finger.” Luke now he is searching for a, “by da way,” up his nose. He runs around saying, “by da way, by da way,” while shoving his finger so high in his nose that he makes it bleed. That was a very BAD Mommy move. Then this evening at a wonderful family dinner where 2 of the 3 children had already had time outs. Adam asks Russ, “where does Ham comes from.” Russ so eloquently says at our dinner table, “A pigs butt.” Guess what new words little Luke starts chanting? Yes, you got it, “Pigs Butt, Pigs Butt.” I don’t let the children say butt I would rather they say bottom or bum. Now here at my wonderful family dinner all I can hear is the chiming of Pigs Butt. (This is when being the only girl in the family is very apparent.) My sweet dear husband has found a new way to completely embarrass his wife. Because you know tomorrow out in public my little Luke will show off his new words. Oh you just got to love this!!!
Easter Fun
We went to AZ for a family reunion. We camped at a place called “Dancing Apache” (or just “DA”). It was lots of fun. The kids enjoyed jumping in the freezing river, shooting bow and arrows and just playing with their cousins. It was great to see all the family and catch up on things. Most of all I was so happy to be able to be there. It was a blessing that my health is back and I can go and do fun things. I love to go on vacation. Now, my definition of vacation with my little Luke has changed. I don’t have any rest and relaxation if he is involved. He is good at keeping me active and going. I do love nap time……:)
Adam’s REAL b-day was yesterday. We went to Sea World with our good friend Rachelle. It was lots of fun until we had this fabulous idea to take the kids to PF Chang’s after a long day at the park. We waited and waited to be seated. It was around 8 b-4 we sat down. I’m sure you can picture the melt downs. It was awful!!! We all left exhausted and vowed never ever to make that mistake again. Adam loved all of his b-day’s fake and real. He is enjoying all of his Puppies. I think I will post pictures of them and have you guess there names. That would be a fun game.
Adam


My sweet little Adam is turning 5 years old. I can’t believe that our little guy is so big! 5 seems so old to me!
We had a leprechaun visit our house after Tyler spent hours setting the perfect trap for him. He tested and re-tested his trap dozens of time to make sure there would be no injury to the Leprechaun. The Leprechaun made a mess of the house and turned the milk a greenish blue and left a note and a picture for the boys. They were so thrilled and excited – they have shown everyone! Tyler had his three wishes already planned out for when he caught the Leprechaun.
Tyler’s Wishes
1. To be Harry Potter
2. To have Hogwarts
3. Diagon Alley
Tyler shared his wishes with Adam as they were going to sleep. Adam starts crying hysterically. He was a mess when he came into the room. He couldn’t even get the words out to explain to Russ what he was crying about. Finally Russ got him to calm down enough to hear the problem. He said that Tyler was going to wish to be Harry Potter. If that happened, then Tyler wouldn’t be in our family anymore. Then he started crying more. Russ reassured Adam that Tyler would stay in our family even if he was Harry Potter. Then Adam went back to bed where Tyler said he would wish Adam could be Ron so they could be together and Leia the dog could be Hermione. It was the sweetest thing!!!
Adam had his Doggie party today. He was thrilled to pieces and was sure this was the best party ever!! He loves it when Mommy throws parties. He now has 18 doggies which he loves. The names crack me up they are always:
Doggie, Brownie, Sleepy, Fuzzy, Army anything that describes what the dog looks like. It is very funny. This goes along with Adam’s thought process. When he gets to choose a name for things it is descriptive . For example, at school one day he was tasked with picking an Indian name. His teachers suggest names like walking turtle, black bear, etc. Adam picked “Indian Adam.” If you have a rubber duck, it’s name would be Duckie. Thinking about Adam’s names cracks me up. He is so literal. His real b-day is the 25th we did it early b/c of Easter and such. So he is calling his party a fake b-day party. When he tells you about his party it is, “at my fake b-day” we did such and such. He is adorable and I just cherish him! HAPPY BIRTHDAY
Confused
So I talked to Dr. Snyder, who is a very kind man. He did tell me that if there was something behind the walls or inside the lining of my colon he would not be able to see it. He also explained how very rare it is to see Hodgkin’s go into the GI tract. I really do understand what rare means. I also know that I’m really good at being rare. So that doesn’t ease my mind. Karin also called to confirm Dr. Snyder’s thoughts.
Here are my concerns:
Positive PET scan
MRI shows thickening and an a-symmetry to it
So this tells me the PET was not a False Positive
I verified that a biopsy would not come back positive if it was taken in the wrong area
This THING could be in an area they can’t see
Me waiting to see if it eats through the lining and causes bleeding seems ludicrous! I would like to catch things b-4 they do damage. I would like to be proactive and save me the pain of going through Chemo and Radiation again.
I want to catch things at the earliest stages to prevent any chance of me having to go through chemo again. So I want to be 100% sure that this could not be cancer of any kind. I don’t care if we just ruled out one type of cancer but I want to make sure it isn’t any kind. My mind is not at ease that it is nothing. I am willing to wait and take the antibiotic and see if it is inflammation. Then if there is something still there in a month from now I think we should figure out what the heck it is b-4 it gets me fighting for my life again.
That is my little rant for the night.
Latest Update
I was waiting for more answers before I posted but I will let you know what I know. The Biopsy came back Negative For Lymphoma. YEAY!!! The MRI shows an a-symmetrical thickening of the wall. So I’m not sure why 2 scans come back and show something and the biopsy shows nothing. Could this mean the things they are seeing in the scans are behind the lining where they can’t see? I’m not really sure. They are going to do a follow up MRI in a few months to see what is happening. I don’t feel like I can say I’m relived b/c I still feel sceptical. Maybe that is just part of the feelings you have after going through cancer. I would feel better if I had a clean scan. I talked to Michelle who is a nurse last night and she said go live up the next 3 months. Stressing won’t change anything it will only be worse on your body. Just live it up until they tell you something more. That is much easier said then done. I don’t know how to turn off the little voice in the back of my head. But I do a very good job keeping so busy that I don’t have time to think about it. At night when I have quiet time is when all the worries come rushing in. But what can I do? I am at the mercy of time and I know some things just take patience. Patience needs to be my new best friend. Patience is the word that has caused so much PAIN in my life. Maybe if I just embrace this concept with a loving heart then I will find peace. Patience in situations like this seems like torture me not bring peace. But this is me breathing and hoping to become one with patience. So everyone BREATH………










